TAG ARCHIVES FOR genetics and genomics


It’s been a busy two weeks in the research world and we have the articles to prove it. Read on to learn about some of the current issues that are impacting research from court deliberations on gene patents and oral history research to revelations about the regulatory and ethical failures of a study involving premature infants.


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Do April showers have you stuck indoors? Take a moment to peruse the latest installment of our Research Ethics Roundup. This week’s issue features articles on a wide range of topics, including how history should remember researchers with checkered pasts, why science tends to favor positive results, and much more.

Building public trust in genomic research: In this response to Read more


by Jackie Tekiela, MS, CIP, Institutional Review Board (IRB) Administrator at Wheaton Franciscan Healthcare

I have to admit, I love a great debate, and the session titled A Great Debate: Be it Resolved That Large-Scale Genomic Research Poses Special Privacy Risks to Research Subjects at the 2012 Advancing Ethical Research Conference was no exception. The session explored the ethical issues and privacy concerns related to genetic information [...] Read more


by Rebecca Boxhorn, JD, Research Associate at the Consortium on Law and Values in Health, Environment & the Life Sciences at the University of Minnesota

Greetings from Minnesota! I am a member of the PRIM&R Blog Squad at the 2012 Advancing Ethical Research (AER) Conference. Unlike the other members of this year’s Blog Squad, I will be attending [...] Read more