A multi-disciplinary research team at Columbia University is conducting a study titled "Individualized Therapies for Genetic Disorders" to better understand the perspectives of stakeholders on issues raised by individualized gene therapies that involve only one or a very small number of patients. IRB members are invited to participate! Read more
TAG ARCHIVES FOR genetics and genomics
Fall is now upon us, and with fall comes the fall Certified IRB Professional (CIP) exam season and the Advancing Ethical Research (AER) Conference. For those who took the exam, for the first time or to re-certify, I hope the process was rewarding and meaningful! For those of you who attended AER17, I hope you found it as exciting and useful as I did. Read more
Poster presenters at our annual conferences often continue their research or program long after the event. Read on for more from Deirdre Lombardi, MPH, CPH, CHES, Challace Pahlevan-Ibrekic, CIP, MS, Brenda Ruotolo, BA, CIP, and Alan Teller, CIP, who presented a poster titled Development of a Specialized IRB for Genetics and Genomics Research, at the 2016 Advancing Ethical Research Conference (AER16). Read more
This week’s Research Ethics Roundup highlights how the "moonshot" initiative could lead to changes in clinical trial participation and how studying dogs’ DNA profiles may lead to advances in psychiatric research for humans. Read more
From the progress in gene therapy for genetic retinal diseases to a survey that finds the majority of animal studies for drugs are not rigorous enough, this week’s Research Ethics Roundup examines some of the latest controversial issues occurring in research ethics.