TAG ARCHIVES FOR genetics and genomics

3
Apr2015

A Dramatic Narrative Drama Reinforces AER14’s Lessons

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3 Apr
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by Jim Gearhart, BA, Member of the Board of Directors for Quorum Review IRB

If you attended PRIM&R's 2014 Advancing Ethical Research (AER14) Conference in December, there's a good chance you attended the performance of "The Drama of DNA: Implications of Genomic Protocols that Reconceptualize the Boundaries of 'Normalcy.'" I'm saying the chances were good because the venue for "The Drama of DNA" was a large conference room filled to standing-room only capacity. In the time since the AER14, I have recalled more than once the themes that "The Drama of DNA" shared with us.
The "Drama of DNA" sprang from the [...] Read more

25
Mar2015

Key Notes From a Keynote: 20+ years Living in My Genes

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25 Mar
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By Kathy Banks, BSc, MSc, continuing review coordinator, animal ethics, University of British Columbia 

PRIM&R is pleased to share a post from Kathy Banks, a member of the PRIM&R Blog Squad for the 2015 Institutional Animal Care and Use Committee (IACUC) Conference. The PRIM&R Blog Squad is composed of PRIM&R members who blog here, on Ampersand, to give our readers an inside peek of what happened at the conference in Boston, MA.

Gene therapy! We can cure ALL the diseases! More [...] Read more

16
Jan2015

Research Ethics Roundup: Artificial Organs, the Sharing of Health Data for Research Purposes, and More

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16 Jan
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From new approaches to genetic research to changing conceptions of privacy, this week’s Research Ethics Roundup explores how advances in technology are changing the course of research.

Most Americans Would Share Health Data for Research: A recent NPR-Truven Health Analytics Health Poll saw a decline in the percentage of Americans willing to share their health information anonymously for research purposes. Fifty-three percent of respondents indicated that they were comfortable sharing anonymized health information, a 15 percent decline [...] Read more