The AER20 keynote address from Wylie Burke, MD, PhD, discussed the implications of the lack of diversity in research. This is a real problem in genetic research: how can a full range of genetic variants be studied if a non-diverse population is assessed? In community research, when obtaining consent, a researcher must make sure the community is fully informed about the extent of the research. Read more


On August 5, 2021, PRIM&R hosted a webinar entitled IRB Review of Expanded Access Protocols that Collect Real World Data: Considerations and Guidance. During this webinar, speakers discussed ethical and analytical considerations when collecting real world data from Expanded Access. Today, they provide further information and answer follow-up questions. Read more


The PRIM&R Knowledge Center houses a wide range of resources to keep you inspired and informed for your work in research ethics and oversight! As you familiarize yourself with the Knowledge Center, we want to direct you to some of our notable resources. Today, we'll share our top five diversity, equity, and inclusion resources for IRBs and IACUCs. Read more


In 2019, as part of a larger process of evaluating PRIM&R’s awards and recognitions and how they support and promote the organization’s mission and core values, we decided to retire the Pillar of PRIM&R designation. Before doing so, we reviewed our roster and the history of the organization to identify and honor anyone who played a key role in the organization’s founding and early growth who had not yet been recognized in this manner. Our review resulted in a list of seven additional individuals whom we believe are deserving of the designation of Pillar of PRIM&R, and are honored to now name Pillars of PRIM&R. Read more