PRIM&R and the Qualitative Data Repository have collaborated to bring together the community of people sharing ideas on how best to share sensitive research data. Read more
4Aug2021
3Aug2021
SBER guidance: Terms of Service agreements, deception, and randomized controlled trials
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3 Aug
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On March 30, 2021, PRIM&R hosted the webinar “Ominum-Gatherum: An SBER Variety Show.” During this webinar, Tonya Ferraro, MEd, and Andrew Hedrick, MPA, CIP, focused on three social, behavioral, and educational research (SBER) topics: Terms of Service agreements, randomized controlled trials in the social sciences, and research involving deception. Following the webinar, the presenters reflected on the session and prepared a guidance document for those working with SBER; we're pleased to share this resource with readers of Ampersand. Read more
29Jul2021
The new PRIM&R Knowledge Center houses a wide range of resources to keep you inspired and informed for your work in research ethics and oversight! As you familiarize yourself with the Knowledge Center, we want to direct you to some of our notable resources. Today, we'll share our top five for IRB/HRPP professionals. Read more
28Jul2021
A multi-disciplinary research team at Columbia University is conducting a study titled "Individualized Therapies for Genetic Disorders" to better understand the perspectives of stakeholders on issues raised by individualized gene therapies that involve only one or a very small number of patients. IRB members are invited to participate! Read more
21Jul2021
As many companies now embrace remote or hybrid work as a long-term option, is it for you? Guest blogger Kim Hunter-Schaedle offers advice on how to transition from emergency remote work to long-term remote work. Read more
14Jul2021
Research Project: IRB Members’ Views on Ethics of Research Using Polygenic Risk Scores
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14 Jul
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We are part of a research group at Columbia University Irving Medical Center that is participating in the NIH-sponsored Electronic Medical Records and Genomics (eMERGE) Network study. As part of our site’s exploration of the ethical, legal, and social issues involved in research using polygenic risk scores (PRS), we are conducting a series of focus groups with stakeholders to explore views on these issues. We are interested in IRB members’ perspectives on the ethical and regulatory challenges that can arise from a study like this. Read more