In the early days of the AIDS epidemic, groups like ACT-UP (AIDS Coalition to Unleash Power) and others worked in powerful and creative ways to demand better treatment for HIV and AIDS and to speed up and improve the process for developing these drugs. Read more
PRIM&R and the Qualitative Data Repository have collaborated to bring together the community of people sharing ideas on how best to share sensitive research data. Read more
On March 30, 2021, PRIM&R hosted the webinar “Ominum-Gatherum: An SBER Variety Show.” During this webinar, Tonya Ferraro, MEd, and Andrew Hedrick, MPA, CIP, focused on three social, behavioral, and educational research (SBER) topics: Terms of Service agreements, randomized controlled trials in the social sciences, and research involving deception. Following the webinar, the presenters reflected on the session and prepared a guidance document for those working with SBER; we're pleased to share this resource with readers of Ampersand. Read more
The new PRIM&R Knowledge Center houses a wide range of resources to keep you inspired and informed for your work in research ethics and oversight! As you familiarize yourself with the Knowledge Center, we want to direct you to some of our notable resources. Today, we'll share our top five for IRB/HRPP professionals. Read more
A multi-disciplinary research team at Columbia University is conducting a study titled "Individualized Therapies for Genetic Disorders" to better understand the perspectives of stakeholders on issues raised by individualized gene therapies that involve only one or a very small number of patients. IRB members are invited to participate! Read more
As many companies now embrace remote or hybrid work as a long-term option, is it for you? Guest blogger Kim Hunter-Schaedle offers advice on how to transition from emergency remote work to long-term remote work. Read more
