5
Nov2021

No one really goes to a Kindergarten Career Day dressed as a clinical research ethics and regulations administrator, right? So how did I grow up to be one?! My winding career path is marked with pivotal moments and the dedication of mentors who poured into my ability and experience. I’m looking forward to giving back to the community by sharing my unique perspective as a Blog Squad member for the 2021 Advancing Ethical Research Conference. Read more

2
Nov2021

Though now we can do larger genetic tests faster and cheaper, it doesn’t always make sense. Time constraints and lack of genetic providers put a limitation on the ability to consent or educate a family before they decide on clinical or research genetic testing, making true informed consent difficult to obtain, and there are ethical considerations for secondary findings. Read more

28
Oct2021

This week's Research Ethics Roundup covers Zika research participants and the lack of follow-up from the researchers, the Henrietta Lacks estate suing over profits on the HeLa cell line, sex bias in neuroscience research, human challenge trials in Britain, and the lack of research on pregnant people. Read more

20
Oct2021

The AER20 keynote address from Wylie Burke, MD, PhD, discussed the implications of the lack of diversity in research. This is a real problem in genetic research: how can a full range of genetic variants be studied if a non-diverse population is assessed? In community research, when obtaining consent, a researcher must make sure the community is fully informed about the extent of the research. Read more