PRIM&R is pleased to bring you blog posts from the PRIM&R Blog Squad about the 2010 Advancing Ethical Research Conference. The PRIM&R Blog Squad wrote every day from the conference, and will continue to blog about how AER is affecting their lives.
- Is the data collected valid?
- If data is invalid, how will research findings impose risk on educational outcomes?
- Can the data really be deidentified?
- Should we implement a data safety management board in education research studies that are studying student behavior through records?
Questions on policies and regulations
- How does the Protection of Pupil Rights Act (PPRA) overrule the Common Rule (45 CFR 46) in education research? What does this mean for IRBs and researchers?
- If a school district does not have a policy about parent notifications or permissions for research, what should you do?
- How do IRBs and researchers balance and stay in the know about the differences in local, state, and federal guidelines?
- How will potential changes to FERPA affect IRBs and researchers?
- What Department of Education-funded education research cannot be exempt under the Common Rule, even though the Common Rule says it can be?
Issues with permissions to conduct research
- Who decides what research is allowed within the school?
- Who is right when it comes to parental permission requirements?
Uncertainty surrounding consent and assent to participate
- Who should assent potential human subjects?
- Should we allow passive consent? (Yes, this is taboo for IRBs, but it’s language is used in education research.)
- Who can assent or consent to research?
- What does it really mean when we say subjects can opt-out?
There are even more areas for discussion, and I strongly encourage my fellow conference attendees, researchers, and human protections staff to take a look at the resources and handouts that are available in the AER Online Conference Portal. Here are a few of the many research studies, journal articles, and tools that I found especially helpful; if you have additional resources that you love, please share them here! Session resources to look at in the AER Online Conference Portal: A15: The Assent Process and Assessing Children’s Competence to Understand a Proposed Research ProjectD21: Challenges of Research with Adolescent PopulationsD26: School-Based Research and the Common Rule: The How-TosE25: Beyond the Basics in Education Research: Difficult Issues from Pre-School to Grad School