23
May2017

PRIM&R has long prided itself on its role as a convener of divergent opinions and viewpoints. One of the ways we fulfill this role is through the development and nurturing of a diverse membership community, hailing from all parts of the research enterprise, from institutions large and small, public and private, from across the country and around the world. Read more

25
May2017

In early 2014, PRIM&R explored the topic of what we call individuals who volunteer for research in a post titled "What’s in a name? Research 'participant' versus research 'subject'." In this post, PRIM&R concludes that, on the whole, "subject" is the most appropriate title for those involved in research studies (recognizing, however, that in some instances "participant " may be appropriate; for example, in community-based participatory and participant-led research). Herein we present the contrasting points of view of three individuals. Read more

19
May2017

This week’s Research Ethics Roundup highlights a Nature editorial that encourages researchers to push back against both public and private forms of censorship in research contracts, the National Institute of Health (NIH)’s Comparative Genomics Branch issues new study with implications for both human and dog disease research, the World Health Organization (WHO) speaks with Doctors Without Borders about using an experimental vaccine to target a new Ebola outbreak, and bioethicists' concern about stem cell researchers' failure to publish study results including discoveries on side effects. Read more

18
May2017

As part of the Interagency Collaborative Animal Research Education (ICARE) Project, PRIM&R convened two Train-the-Trainers Institutes (TTIs) in 2016 for IACUC leaders and educators to learn how active learning techniques can enhance the effectiveness of their training programs. To further disseminate the materials and lessons from the TTIs, PRIM&R hosted the free webinar Incorporating Active Learning into IACUC Training. We’re pleased to share answers to follow-up questions from the webinar with the readers of Ampersand. Read more

16
May2017

For this month's question, you are a principal investigator in a very promising Phase 3 pancreatic cancer study. The sponsor has just informed you that you can enroll only one more patient before enrollment closes. Enrolling in this study might save your patient’s life. Ten of your patients are eligible for the study. Who do you invite to participate in the study, and how do you decide? Read more

12
May2017

MISST is an acronym the Connected and Open Research Ethics (CORE) initiative research team uses to describe research that involves the use of mobile, imaging, pervasive-sensing, social media, and location-tracking strategies that can passively observe human behavior. The CORE is a growing community where conversations about research ethics and technology are beginning. We seek to increase awareness of this resource and we invite IRBs and research stakeholders to get involved—specifically, we want to hear from the PRIM&R community! We invite you to join the conversation by signing up for the CORE Network and sharing your questions about how to do this research and/or your expertise and lessons learned. You can also follow CORE on Twitter and LinkedIn. Together we can learn from one another and begin to have an informed discussion developing an ethical framework for MISST. Read more

10
May2017

Poster presenters at our annual conferences often continue their research or program long after the event. Read on for more from Deirdre Lombardi, MPH, CPH, CHES, Challace Pahlevan-Ibrekic, CIP, MS, Brenda Ruotolo, BA, CIP, and Alan Teller, CIP, who presented a poster titled Development of a Specialized IRB for Genetics and Genomics Research, at the 2016 Advancing Ethical Research Conference (AER16). Read more

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