The PRIM&R Knowledge Center houses a wide range of resources to keep you inspired and informed in your work in research ethics and oversight! Explore and register for live programs, access recordings and materials from past conferences and webinars, view video and podcast interviews with leaders in the field, and more. Browse resources by features such as content type, topic, and level, and sort within those results to find the resources most relevant to you.
As you familiarize yourself with the Knowledge Center, we’d like to direct you to some notable resources; today, we’ll share our top five resources on diversity, equity, and inclusion.
- The Colors of COVID-19: Embracing the Novel Ethical Challenges and Opportunities in COVID-19 Vaccine Trials
In our February 2021 webinar, Stephen B. Thomas, PhD, and Sandra Crouse Quinn, PhD, presented a discussion of challenges, advances, and progress regarding barriers to the involvement of minorities in research. In 2010, Drs. Thomas and Quinn presented a webinar for PRIM&R entitled “Distrust, Race, and Research: Overcoming Barriers to Recruitment and Retention of Minority Populations” (available for free in the Knowledge Center). In our contemporary context, these topics are more critical than ever. Drs. Thomas and Quinn brought us up to date on their work and spoke to current challenges and opportunities raised by the COVID-19 pandemic and Black Lives Matter protests.
- Podcast: Corbie-Smith and Michaels – Why Are Minority Groups Less Likely to Participate In Research?
Distrust of research among African Americans stems from a history of racial discrimination, exploitation and ethical misconduct in this country. African Americans are more likely to believe that doctors would ask them to participate in harmful research, expose them to unnecessary risks, not explain research, or include them in experiments without their consent. The research community can approach and address these issues of distrust in a couple of different ways. This episode of More Than Meets the IRB includes segments from a panel discussion entitled “Increasing the Public’s Understanding of Clinical Research” and focuses on the question of why minority groups are less likely to participate in research.
- Governance, Trust, and Culture: Strengthening Tribal-Academic Research Partnerships
Partnerships between American Indian/Alaska Native (AI/AN) tribal nations and academic research institutions have the potential to be mutually beneficial and long-lasting, and to contribute to tribal sovereignty and research sustainability. During this October 2018 webinar, speakers presented an overview of the research oversight structures that exist within American Indian/Alaska Native tribal nations and explore the impact of governance, trust, and culture on tribal-academic research partnerships. They also provided resources, tips, and strategies for IRB review of research with AI/AN tribal nations and how to recognize effective partnerships between the researcher and the tribal nation.
- People & Perspectives: Warren K. Ashe, PhD – My Path to the NIH
Warren K. Ashe, PhD, describes his early childhood growing up in the segregated south. He discusses his time in the military and his journey through undergraduate studies at Howard University, to a job at the NIH where he became the first African American Senior Scientific Advisor.
People & Perspectives is a digital story-telling library featuring stories of those working in the research and research oversight field.
- Exploring and Enhancing Diversity for IACUCs and IRBs
IACUCs and IRBs should comprise skilled and knowledgeable individuals committed to the common goal of ensuring and promoting the ethical conduct of research. While most institutions have a diversity policy or program, the focus is often on demographic characteristics. For IACUCs and IRBs, expanding the definition to include diversity of perspectives, backgrounds, experiences, and social identities can strengthen a committee’s overall ability to carry out its mission. In this free May 2018 webinar, speakers discussed how IACUC and IRB staff and members can foster and promote diverse representation on their committees, and utilize that diversity to enhance research oversight.