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Tag: data sharing

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PRIM&R’s Comments on NIH’s Draft Policy for Data Management and Sharing and Supplemental Draft Guidance

(PRIM&R) Public Responsibility in Medicine and Research

On November 8, 2019, the National Institutes of Health (NIH) released its Draft NIH Policy for Data Management and Sharing…

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Webinar Follow-Up: Data Sharing in SBER: Balancing Transparency and Human Research Protections

(PRIM&R) Public Responsibility in Medicine and Research

Enthusiasm for data sharing and research transparency has grown across the social sciences. This newer scholarly imperative has begun to…

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Transparently Unclear: Data Sharing in Machine Learning Research

(PRIM&R) Public Responsibility in Medicine and Research

There’s a growing trend in Social, Behavioral, and Education Research (SBER)–machine learning–in which investigators often request to obtain, through direct…

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Applying the new HIPAA Exemption: Are you in or out?

(PRIM&R) Public Responsibility in Medicine and Research

For investigators, IRB members, and IRB staff alike, the revised Common Rule’s new exempt category at 45 CFR 46.104(d)(4)(iii) was…

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Minding the (db)GaP: Age of Majority and the NIH’s GDS Policy

(PRIM&R) Public Responsibility in Medicine and Research

The 2018 Advancing Ethical Research Conference (AER18) was my second PRIM&R conference, and this year I came armed with questions…

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