TAG ARCHIVES FOR data sharing

16
Jan2015

Research Ethics Roundup: Artificial Organs, the Sharing of Health Data for Research Purposes, and More

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16 Jan
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From new approaches to genetic research to changing conceptions of privacy, this week’s Research Ethics Roundup explores how advances in technology are changing the course of research.

Most Americans Would Share Health Data for Research: A recent NPR-Truven Health Analytics Health Poll saw a decline in the percentage of Americans willing to share their health information anonymously for research purposes. Fifty-three percent of respondents indicated that they were comfortable sharing anonymized health information, a 15 percent decline [...] Read more

27
Jan2014

Research Ethics Roundup: A fiscal year review of 2013, proposed revisions to the Common Rule, and more

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27 Jan
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By Meryn Robinson, Educational Programs and Membership Services

While we’re already three weeks into the New Year, I hope that you’ll consider adding one more resolution to your list: keeping up with Research Ethics Roundup! This year, and always, we commit to sharing timely and relevant stories related to research ethics and oversight with our loyal readers. As you read along, please don’t hesitate to comment on the pieces that interest you. We would love to hear your thoughts!

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18
Jan2014

Thirteen from ’13: The Posts that Caught Your Attention

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18 Jan
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by Avery Avrakotos, Education and Policy Manager, and Meryn Robinson, Educational Program and Membership Services

Technological advances, the growing need for comparative effectiveness research, an increasing demand for data transparency, and the continued globalization of the research enterprise were among some of the issues that human subjects protections professionals grappled with in 2013. For those involved in animal care and use, the year marked a continuation of efforts to educate the public about the value of animal research. As we reflect on 2013, and look ahead to what 2014 will bring, we are pleased to share with you a collection of Ampersand posts that reflect some of the year's major events, both for PRIM&R and [...] Read more