TAG ARCHIVES FOR data sharing

30
Jan2015

Research Ethics Roundup: Priorities for Research Funding, Sharing Clinical Trial Data, and More

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30 Jan
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It has been a busy few weeks in the research oversight field with the release of a much anticipated Institute of Medicine report on data sharing and a new bill that seeks to overhaul drug and device development. Explore these and other stories below. HHS, Research Community Debate Informed Consent Policy: This piece from Kaiser Health News explores some of the various viewpoints surrounding the changes proposed by the Office for Human Research Protections in their “Draft Guidance on Disclosing Reasonably Foreseeable Risks in Research Evaluating Standards of Care." Read more

16
Jan2015

Research Ethics Roundup: Artificial Organs, the Sharing of Health Data for Research Purposes, and More

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16 Jan
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From new approaches to genetic research to changing conceptions of privacy, this week’s Research Ethics Roundup explores how advances in technology are changing the course of research.

Most Americans Would Share Health Data for Research: A recent NPR-Truven Health Analytics Health Poll saw a decline in the percentage of Americans willing to share their health information anonymously for research purposes. Fifty-three percent of respondents indicated that they were comfortable sharing anonymized health information, a 15 percent decline [...] Read more

27
Jan2014

Research Ethics Roundup: A fiscal year review of 2013, proposed revisions to the Common Rule, and more

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27 Jan
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By Meryn Robinson, Educational Programs and Membership Services

While we’re already three weeks into the New Year, I hope that you’ll consider adding one more resolution to your list: keeping up with Research Ethics Roundup! This year, and always, we commit to sharing timely and relevant stories related to research ethics and oversight with our loyal readers. As you read along, please don’t hesitate to comment on the pieces that interest you. We would love to hear your thoughts!

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