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Tag: big data

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AER19 Blog Squad: The Secrets of Big Data—Public, Private, or What?

(PRIM&R) Public Responsibility in Medicine and Research

At PRIM&R's 2019 Advancing Ethical Research Conference, Ivor Pritchard, PhD, discussed the relation between public, private, and social information in…

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PRIM&R’s Response to FDA’s Proposed Regulatory Framework for Modifications to Artificial Intelligence/Machine Learning-Based Software as a Medical Device

(PRIM&R) Public Responsibility in Medicine and Research

In April, the Food and Drug Administration (FDA) issued a discussion paper, "Proposed Regulatory Framework for Modifications to Artificial Intelligence/Machine…

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Pervasive Data Ethics (PERVADE) Team Seeks Insights from IRB Members

(PRIM&R) Public Responsibility in Medicine and Research

The growing prevalence of data-rich networked information technologies—such as the internet of things, wearable devices, ubiquitous sensors, and social sharing…

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Adapting Certificates of Confidentiality Policy Under the 21st Century Cures Act: Benefits and Challenges

(PRIM&R) Public Responsibility in Medicine and Research

At PRIM&R’s 2017 SBER conference, I had the opportunity to sit in on the excellent didactic session, “Certificates of Confidentiality…

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Elisa Hurley
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From the Director: Highlights of PRIM&R’s Ethics of Data Access, Use, and Sharing for Human Subjects Research Workshop

(PRIM&R) Public Responsibility in Medicine and Research

On March 1, 2017, PRIM&R held a day-long Ethics of Data Access, Use, and Sharing for Human Subjects Research Workshop…

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PRIM&R advances the highest ethical standards in the conduct of research. We accomplish this mission through education, membership services, professional certification, public policy initiatives, and community building.