At PRIM&R’s 2017 SBER conference, I had the opportunity to sit in on the excellent didactic session, “Certificates of Confidentiality (CoCs) and National Institute of Justice (NIJ) Privacy Certificates,” given by Petrice Brown-Longenecker, PhD, CIP (Extramural Human Research Protection Officer, NIH); Elonna Ekweani, JD (Public Health Analyst, NIH); Mary Ramirez, MA, CIP (Assistant Director, Health Sciences and Behavioral Sciences IRB, University of Michigan); and Leslie E. Wolf, JD, MPH (Professor; Director, Center for Law, Health, and Society, Georgia State University College of Law). Read more
TAG ARCHIVES FOR big data
On March 1, 2017, PRIM&R held a day-long Ethics of Data Access, Use, and Sharing for Human Subjects Research Workshop in partnership with the Multi-Regional Clinical Trials Center of Brigham and Women’s Hospital and Harvard University (MRCT Center). I am pleased to announce that the proceedings and other information from the day are now available on PRIM&R’s website. Read more
This week’s Research Ethics Roundup highlights the argument for treating medical data donations like organ donations, bioethicists’ suggestions for how to lower drug costs, how Australian animal researchers are using unpiloted drones, and the US Department of Agriculture (USDA)’s decision to re-publish a portion of the Animal Welfare Act records that they previously removed. Read more
In Case You Missed It (ICYMI): From time-to-time, PRIM&R will feature particularly well-received posts from the recent past. These posts remain timely as topics of discussion in the fields of research ethics, human subjects protections, or animal care and use. Highlighting them now enables readers who may have missed them a chance to read and comment. In this ICYMI, Michael Zimmer delves into one of the most important - and ethically fraught - new fields of research: Big Data. Read more
We clearly have entered the era of big data. Armed with petabytes of transaction data, clickstreams and cookie logs, as well as data from social networks, mobile phones, and the "internet of things," a wide range of economic interests, including consumer marketing, health care, manufacturing, education, and government, are now in pursuit of the value of data-driven decision-making that big data promises.
At the same time, the big data that increasingly fuels economic decision-making has emerged as a rich terrain for engaging in academic research and experimentation: think of the Facebook emotional contagion experiment of 2014, where the news feeds of nearly 700,000 users were altered [...] Read more