TAG ARCHIVES FOR social media

8
Jan2016

From a study on the lack of racial diversity in clinical research to appeals for improved clinical trial reporting, this week’s Research Ethics Roundup looks at new policy concerns for the research community.

Social Media1. Why Social Media Needs to Have a Code of Ethics for Clinical Research: In this opinion piece for CIO Magazine, Eric Swirsky argues that the clinical research community needs to develop detailed research guidelines for research done with social media data. He points out that social media users may not fully [...] Read more

15
Nov2015

When we interact with colleagues at the 2015 Social, Behavioral, and Educational Research Conference (SBER15), an extremely helpful insight can arrive at any time, and from any source. But it’s difficult to know in advance when we will perceive it, and how it will affect the way we address our own research responsibilities.

For instance, I had no idea that an insight from a morning presentation would affect the way that I approach a challenge that I occasionally face as IRB Chair at Providence College. From time to time, we receive applications for projects in which advance processes of informed consent are not appropriate because they would “tip off” participants and [...] Read more

7
Apr2015

By Amy Davis, JD, MPH

Social media platforms such as Facebook, Twitter, YouTube, LinkedIn, and others have dramatically exposed new opportunities for conducting research and recruiting subjects. Although the application of these tools to the research enterprise has been cautious, they are used for a variety of purposes. Researchers are conducting observational studies of online behaviors and survey research; informing patient groups of relevant clinical trials; conducting community consultation in anticipation of emergency research (Stephens, et al.); locating subjects lost to follow up; and even designing studies through crowdsourcing public input. (Thompson) In [...] Read more