We are inviting researchers and IRB members to evaluate two research scenarios that involve passive and pervasive sensor technologies. We are interested in learning what participants think would be concerns from three perspectives: research participant, research team, and IRB member. This research will be used to advance development of decision support tools to support digital health research. Read more
A multi-disciplinary research team at Columbia University is conducting a study titled "Individualized Therapies for Genetic Disorders" to better understand the perspectives of stakeholders on issues raised by individualized gene therapies that involve only one or a very small number of patients. IRB members are invited to participate! Read more
Are you an institutional official who works in research compliance, research integrity, human research subjects protection, animal care and use, or conflicts of interest compliance? You are invited to complete a short survey being conducted by researchers at Washington University School of Medicine. The Addressing Violations of Research Integrity and Compliance (AVRIC) study aims to understand institutional experiences and approaches to remediating research noncompliance or integrity violations. Read more
Bioethical discussion of sharing research findings with participants has proliferated over the last decade. The University of Rochester and Kennedy Krieger Institute are conducting a study that seeks to ascertain stakeholder perspectives on the return of individual research results through qualitative interviews in order to inform decisions related to the return of individual results. Read more
Are you or have you been a member of an IRB, REB, or REC and are interested in sharing your experiences navigating ethical challenges in reviewing global health proposals? If so, the Human Engagement Learning Platform (HELP) for Global Health at Emory University’s Rollins School of Public Health needs your help! Read more
