NASEM has impaneled an impressive committee of experts to evaluate current and future uses of population descriptors in genomic research. This is going to require a deeply challenging examination—a communal reckoning, really—of how terms like race, ethnicity, and ancestry are perceived by diverse stakeholders in the genomic research community and the public at large. Read more
The rollout of testing for sickle cell disease (SCD), implementation of mandatory screening laws, and subsequent stigmatization of African Americans have all had impacts on the Black community’s view of research and testing. For Black History Month, we want to highlight this critical story that most likely helped shape the climate of medical and research mistrust. Read more
