TAG ARCHIVES FOR internet

1
May2015

ResearchKit and the Changing Face of Human Subjects Protections

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1 May
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By Avery Avrakotos, education and policy manager

ResearchKit, an open-source software framework aimed at furthering our understanding of health and disease, provides researchers a tool to conduct research utilizing Apple's iPhone that developers hope will help revolutionize how that research is conducted.
First introduced at an industry event in March, ResearchKit consists of three modules: the first focuses on providing potential subjects with information about participation and obtaining subject consent; the second administers surveys using a pre-built user [...] Read more

29
Apr2015

Webinar Follow-Up: Hot Topics in Online Survey Research

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29 Apr
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On March 12, 2015, PRIM&R hosted a webinar titled Hot Topics in Online Survey Research: Subject Identification, Consent, and Risk, which was presented by Elizabeth Buchanan, PhD, and B.R. Simon Rosser, PhD, MPH, LP.

Online research methods are increasingly common across scholarly disciplines. Particular scientific and ethical issues arise for online researchers in the areas of recruitment, consent, and risk/benefit analyses. This webinar addressed three "hot topics" in online survey research: subject identification, models of consent, and risk/benefit analyses. Following a vibrant discussion at the conclusion of the webinar, Dr. Buchanan [...] Read more

22
Oct2014

Coming Face to Face with the New Normal in Internet Research

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22 Oct
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Elizabeth_Buchananby Elizabeth Buchanan, PhD, Endowed Chair in Ethics, University of Wisconsin-Stout

On Thursday, October 30, PRIM&R will host a webinar, The Future of Internet Research: What We Can Learn from the Facebook Emotional Contagion Study, which will explore the Facebook emotional contagion study and some of the questions that it raised related to internet and social media research. In advance of that webinar, we are sharing different perspectives on the controversy. Last week, PRIM&R’s executive director, Elisa A. Hurley, PhD, <[...] Read more

15
Oct2014

Big Data, Commercial Research, and the Protection of Subjects

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15 Oct
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by Elisa A. Hurley, PhD, Executive Director

Much has been written in the past few months—pro and con—about the results of the Facebook emotional contagion study published in June in the Proceedings of the National Academy of Sciences. The study manipulated the News Feeds of 700,000 unknowing Facebook users for a week in January 2012 by adjusting Facebook’s existing algorithm to over-select for either more positive or more negative language in posts. At the end of the week, [...] Read more

1
Aug2014

Research Ethics Roundup: The rise of big data in health care, support for psychiatric research, and more

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1 Aug
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As summer swings into full gear, be sure to take a break from the heat to delve into the research ethics news making headlines this month. 
 
The Era of Big Data and its Implication for Big Pharma: The integration of technology into health care has resulted in an abundance of data about our health. In this piece for the Health Affairs Blog, Marc Berger et al. discuss how “big [...] Read more