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Tag: informed consent

> informed consent
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The “Principle Investigator”: This Blog May Make You Feel Fizzy

(PRIM&R) Public Responsibility in Medicine and Research

I recently screened for a clinical trial in which the consent form indicated that the product might make me feel…

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Community Research, Ethics, and the Impact of the Havasupai Case

(PRIM&R) Public Responsibility in Medicine and Research

The 2020 Advancing Ethical Research Conference (AER20) keynote address from Wylie Burke, MD, PhD, "Learning from Communities about Diversity and…

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Moving Ahead: eConsent in Research

(PRIM&R) Public Responsibility in Medicine and Research

The ongoing pandemic has strained both hospital equipment and personnel resources and caused clinic staff to become less accessible for…

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Final NIH Data Sharing Rule published 

(PRIM&R) Public Responsibility in Medicine and Research

In November of 2019, NIH asked the public for comment on a proposed set of rules that would eventually govern the sharing of data…

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CIRTification: A Resource for Educating Patient and Community Research Partners about Human Research Protections

(PRIM&R) Public Responsibility in Medicine and Research

Are investigators at your institution engaging patient and community partners in research? Some of these partners will need training in…

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PRIM&R advances the highest ethical standards in the conduct of research. We accomplish this mission through education, membership services, professional certification, public policy initiatives, and community building.