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Tag: informed consent

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ResearchKit and the Changing Face of Human Subjects Protections

(PRIM&R) Public Responsibility in Medicine and Research

By Avery Avrakotos, education and policy managerResearchKit, an open-source software framework aimed at furthering our understanding of health and disease,…

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Sophie’s Science Project: A Comic to Educate Children about Clinical Research

(PRIM&R) Public Responsibility in Medicine and Research

by Athos Bousvaros, MD, Boston Children's HospitalAthos Bousvaros, MD, and Susan Kornetsky, MPH, both of Boston Children's Hospital, recently created…

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Research Ethics Roundup: Apple Launches ResearchKit, FDA Issues Draft Guidance on Electronic Informed Consent, and More

(PRIM&R) Public Responsibility in Medicine and Research

Technology takes center stage in this week's Research Ethics Roundup. On Monday, Apple introduced a new open-source framework that could…

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Overheard: Studies Using Deception

(PRIM&R) Public Responsibility in Medicine and Research

by Amy Davis, JD, MPHOverheard, a new series here on Ampersand, is a glimpse into conversations, discussion, and debate on…

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PRIM&R’s Response to OHRP’s Draft Guidance on Research Evaluating Standards of Care

(PRIM&R) Public Responsibility in Medicine and Research

by Elisa A. Hurley, PhD, Executive Director, and Avery Avrakotos, Education and Policy ManagerResearch on the comparative effectiveness of commonly…

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PRIM&R advances the highest ethical standards in the conduct of research. We accomplish this mission through education, membership services, professional certification, public policy initiatives, and community building.