TAG ARCHIVES FOR individual research results

10
Mar2021

Bioethical discussion of sharing research findings with participants has proliferated over the last decade. The University of Rochester and Kennedy Krieger Institute are conducting a study that seeks to ascertain stakeholder perspectives on the return of individual research results through qualitative interviews in order to inform decisions related to the return of individual results. Read more

17
Dec2018

The question of whether and how to return individual research results to subjects has been an ongoing area of uncertainty for investigators and research institutions. The recent report from the National Academies of Science, Engineering, and Medicine (NASEM), Return of Individual-Specific Research Results to Participants: Guidance for a New Research Paradigm, offered recommendations for “a process-oriented approach to returning individual research results that considers the value to the research subject, the risks and feasibility of return, and the quality of the research laboratory.” On October 3, 2018, PRIM&R hosted a webinar to summarize the recommendations of the report, and provide guidance specifically on its potential implications for IRBs. Read more