In July of this year, the National Academies of Science, Medicine, and Engineering (NASEM) released a report titled, “Returning Individual Research Results to Participants: Guidance for a New Research Paradigm.” It’s a comprehensive report that raises many important considerations and proposes a number of thoughtful recommendations on this very timely topic. I won’t be able to do justice to all of its details and nuance here. Instead, I’ll share what I take to be some key themes and takeaways, including for IRBs. Read more
TAG ARCHIVES FOR incidental findings
by Maeve Luthin, JD, Professional Development Manager
Oh, the weather outside is frightful, but Research Ethics Roundup is so delightful! So, we hope you’ll bundle up, hunker down, and enjoy some of the research ethics stories that are making headlines this week. We, here at PRIM&R, wish you a joyous holiday season and good health in the New Year and always.
by the staff of the Presidential Commission for the Study of Bioethical Issues
This piece, which originally appeared on the blog of the Presidential Commission for the Study of Bioethical Issues, has been reposted with permission.
We all need to know how to better manage health information that we did not expect. Today, the Presidential Commission for the Study of [...] Read more