TAG ARCHIVES FOR identifiability

20
Jun2018

Webinar Follow-Up: Forward-Looking Strategies for IRBs in the Genomic Age

Tags:
20 Jun
No comments

On May 10, PRIM&R hosted a webinar, Forward-Looking Strategies for IRBs in the Genomic Age: Preparing for Shifting Concepts of Identifiability, to provide expert input on the impact of breakthroughs in genomics research on traditional notions of identifiability.The panel consisted of Jiayan Chen, JD, a partner at McDermott Will & Emery, LLP, and Suzanne Rivera, PhD, MSW, vice president for research and technology management at Case Western Reserve University. After the webinar, Ms. Chen and Dr. Rivera responded to some of the attendee questions time didn’t permit us to address live. We’re pleased to share those responses with the readers of Ampersand. Read more

22
Oct2014

Coming Face to Face with the New Normal in Internet Research

Tags:
22 Oct
No comments

Elizabeth_Buchananby Elizabeth Buchanan, PhD, Endowed Chair in Ethics, University of Wisconsin-Stout

On Thursday, October 30, PRIM&R will host a webinar, The Future of Internet Research: What We Can Learn from the Facebook Emotional Contagion Study, which will explore the Facebook emotional contagion study and some of the questions that it raised related to internet and social media research. In advance of that webinar, we are sharing different perspectives on the controversy. Last week, PRIM&R’s executive director, Elisa A. Hurley, PhD, <[...] Read more

14
Dec2012

Would you post your genome online? A debate about privacy risks in genomic research

Tags:
14 Dec
No comments

by Jackie Tekiela, MS, CIP, Institutional Review Board (IRB) Administrator at Wheaton Franciscan Healthcare

I have to admit, I love a great debate, and the session titled A Great Debate: Be it Resolved That Large-Scale Genomic Research Poses Special Privacy Risks to Research Subjects at the 2012 Advancing Ethical Research Conference was no exception. The session explored the ethical issues and privacy concerns related to genetic information [...] Read more