In this edition of Research Ethics Reading List, we feature books on HIV/AIDS and research. (Book description copy comes courtesy of each book’s publisher or author website where possible.) Are there books related to HIV/AIDS and research ethics that you want to share? Tell us about them in the comments!
Impure Science: AIDS, Activism, and the Politics of Knowledge (1998)
Steven Epstein
In the early days of the AIDS epidemic, groups like ACT-UP (AIDS Coalition to Unleash Power) and others worked in powerful and creative ways to demand better treatment for HIV and AIDS and to speed up and improve the process for developing these drugs. Read more
How was it listening to Dr. Massie’s plenary session at the 2015 AER Conference (AER15)? It was like sitting in a cozy room, warmed by a glowing fire, catching up with a too-long-out-of-touch dear friend. Bob Massie is a magical storyteller. Describing in measured tones, touched with a tinge of irony a life challenged by health issues both genetic (hemophilia) and manmade (infection with HIV and Hepatitis C from a tainted blood supply), he painted dozens of tender, amusing, frightening pictures of a life lived, delayed [...] Read more
PRIM&R is pleased to welcome Boghuma Kabisen Titanji, MD, MSc, PhD, as one of the keynote speakers at the upcoming 2015 Advancing Ethical Research Conference to be hosted in Boston November 12-15, 2015. Dr. Titanji will lead off the conference program on November 13 with an address titled, Facts and Fiction: The Ethics of Healthcare Research in Developing Countries.
PRIM&R: How did you develop an interest in your field?
Boghuma Kabisen Titanji (BT): Very early on during my training as a physician in my home country Cameroon, I [...] Read more
In this week's Research Ethics Roundup, we explore how new approaches are being used to address longstanding questions, such as those raised by expanded access or compassionate use, and chart a course for the future of biomedical innovation.
Company Creates Bioethics Panel on Trial Drugs: In an effort to address concerns related to compassionate use requests, Johnson and Johnson announced last week that they have appointed bioethicist Arthur L. Caplan, PhD, to "to create a panel that will make decisions about patients' requests for potentially lifesaving medicine."
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