by Athos Bousvaros, MD, Boston Children's Hospital
Athos Bousvaros, MD, and Susan Kornetsky, MPH, both of Boston Children's Hospital, recently created a comic book, titled Sophie's Science Project, to help teach children about medical research. Below Dr. Athos shares their motivation for creating the comic book and what they hope it will accomplish.
For children and adolescents to participate in pediatric clinical research, parental permission is needed, but the children themselves are also expected to provide assent. Assent is defined by the US Department of Health and Human Services as "a child's [...] Read more
by Susie A. Han and Valerie Gutmann Koch
Susie A. Han, MA, MA, is the deputy director and principal policy analyst of the New York State Task Force on Life and the Law. Valerie Gutmann Koch, JD, is a visiting assistant professor at Chicago-Kent College of Law, lecturer at the MacLean Center for Clinical Medical Ethics, and special advisor to the New York State Task Force on Life and the Law; she is the former senior attorney and consultant to the Task Force.
First-person informed consent—a [...] Read more
by Susan Gilbert, Public Affairs and Communications Manager at The Hastings Center
A curious aspect of the debate over the use of animals in research is that the two “sides” see themselves as making different kinds of arguments when in fact they have some fundamental similarities. For example, a recent post in Ampersand discussed the line between emotions and fact in debates over the use of animals in research. It referred to the keynote speech given by Allyson Bennett, PhD, at the 2013 Institutional Animal Care and Use Committee (IACUC) Conference[...] Read more
by David Perlman, PhD, President & Founder of E4-Eclipse Ethics Education Enterprises, LLC
I borrowed the title of this blog post from Nancy Berlinger, PhD, at the Hastings Center. Every spring, before the summer season, she writes a post for the Hastings Center Bioethics Forum about works of fiction that tackle ethical issues in research and medicine.
Bioethics as entertainment is nothing new. My personal Top 10 List of films, books, and television programs show research gone awry is:
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by Megan Hayes Mahoney, Visiting Digital Library Research Librarian at the University of Illinois at Urbana-Champaign
In 2010, the University of Illinois at Urbana-Champaign (UIUC) began work on a multi-year project designed to make ethics information and training resources readily accessible to those working in the fields of science and engineering. PRIM&R was honored to be a part of the effort, which was supported by a grant awarded to UIUC by the National Science Foundation (NSF). PRIM&R contributed encyclopedia entries for commonly used terms in human subjects and animal research, as well as a listing of exemplary research forms, policies, manuals, and checklists related [...] Read more