NASEM has impaneled an impressive committee of experts to evaluate current and future uses of population descriptors in genomic research. This is going to require a deeply challenging examination—a communal reckoning, really—of how terms like race, ethnicity, and ancestry are perceived by diverse stakeholders in the genomic research community and the public at large. Read more
On May 10, PRIM&R hosted a webinar, Forward-Looking Strategies for IRBs in the Genomic Age: Preparing for Shifting Concepts of Identifiability, to provide expert input on the impact of breakthroughs in genomics research on traditional notions of identifiability.The panel consisted of Jiayan Chen, JD, a partner at McDermott Will & Emery, LLP, and Suzanne Rivera, PhD, MSW, vice president for research and technology management at Case Western Reserve University. After the webinar, Ms. Chen and Dr. Rivera responded to some of the attendee questions time didn’t permit us to address live. We’re pleased to share those responses with the readers of Ampersand. Read more
