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Tag: data sharing

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IRB

At the Dawn of Qualitative Data Sharing: Questions IRBs May Want to Ask During Protocol Review

(PRIM&R) Public Responsibility in Medicine and Research

By James M. DuBois, DSc, PhD There is currently nothing to prevent qualitative researchers from dumping data that are sensitive…

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Research Ethics

An NIH Data Management and Sharing (DMS) Policy Primer for the PRIM&R Community

(PRIM&R) Public Responsibility in Medicine and Research

By Elena Ghanaim and Jonathan Lawson The NIH Data Management and Sharing (DMS) Policy is a watershed moment for the…

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AI

Article Review: Does Deidentification of Data from Wearable Devices Give us a False Sense of Security?

(PRIM&R) Public Responsibility in Medicine and Research

Editor's Note: We rely on experts in the PRIM&R community to provide insight and commentary on substantial issues and changes within…

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Hands typing on a laptop
Uncategorized

Research Ethics Roundup: public trust in data sharing, geographical equity efforts, and more

(PRIM&R) Public Responsibility in Medicine and Research

This month's Research Ethics Roundup covers public trust in data sharing, geographical equity efforts, income-based study attrition, and problems with…

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Uncategorized

PRIM&R calls for NIH to deepen engagement with the public on data sharing rules

(PRIM&R) Public Responsibility in Medicine and Research

In November 2021, the National Institutes of Health (NIH) Office of Science Policy (OSP) published a Request for Information (RFI)…

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PRIM&R advances the highest ethical standards in the conduct of research. We accomplish this mission through education, membership services, professional certification, public policy initiatives, and community building.