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Tag: Data privacy

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Article Review: Does Deidentification of Data from Wearable Devices Give us a False Sense of Security?

(PRIM&R) Public Responsibility in Medicine and Research

Editor's Note: We rely on experts in the PRIM&R community to provide insight and commentary on substantial issues and changes within…

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person using laptop with transparent data overlay
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Research Using Secondary Data: New Challenges and Novel Resources for Ethical Governance

(PRIM&R) Public Responsibility in Medicine and Research

The digitization of everyday life has led to an interesting phenomenon for research administrators; the ethical concerns that arise from…

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AER19 Blog Squad: The Secrets of Big Data—Public, Private, or What?

(PRIM&R) Public Responsibility in Medicine and Research

At PRIM&R's 2019 Advancing Ethical Research Conference, Ivor Pritchard, PhD, discussed the relation between public, private, and social information in…

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Research Ethics Roundup: ClinicalTrials.gov, gene drives, deidentification, and more

(PRIM&R) Public Responsibility in Medicine and Research

This edition of Research Ethics Roundup covers ClinicalTrials.gov reporting, the ethics of gene drive technology, varied responses to germline editing,…

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PRIM&R advances the highest ethical standards in the conduct of research. We accomplish this mission through education, membership services, professional certification, public policy initiatives, and community building.