by Joan Rachlin, Executive Director
A remarkable documentary, How to Survive a Plague (HtSaP), was shown at PRIM&R’s 2012 Advancing Ethical Research (AER) Conference last month. HtSaP was just nominated for an Academy Award last week in the Best Documentary category, and I am writing to recommend it to you because it has particular relevance for those working in the research ethics field. In addition [...] Read more
by Karen M. Meagher, PhD, senior policy and research analyst at the Presidential Commission for the Study of Bioethical Issues
The Presidential Commission for the Study of Bioethical Issues (PCSBI) has consistently noted the marked need for effective ethics education. With this commitment in mind, the Commission recently released a companion study guide to its 2011 historical investigation report, <[...] Read more
by Susan Trinidad, MA, Research Scientist in the Department of Bioethics & Humanities at the Center for Genomics & Healthcare Equality at the University of Washington
Before I get to the meat of this post, I want to dispel any sense you may have that we were dour and serious all last week in San Diego – despite the grievous lack of sunshine. Each morning, we were favored with the musical stylings of [...] Read more
by Kaye Edwards, Associate Professor of Independent College Programs at Haverford College
On September 27, I attended the PRIM&R webinar titled Community Engagement in International Research: Considerations for Ethics Review with Jim Lavery, MSc, PhD, and Katherine King, PhD. As a new member of PRIM&R and a former institutional review board (IRB) member at my institution, Haverford College, I found the webinar to be relevant and thought-provoking.
In their role of protecting human subjects in research, institutional review boards (IRBs) tend to focus on informed consent of individual participants, but Lavery and King encouraged us to consider not just individuals who [...] Read more
On September 27, 2012, PRIM&R hosted a webinar titled Community Engagement in International Research: Considerations for Ethics Review. Following the webinar, I had a chance to connect with the presenters, Jim Lavery, MSc, PhD, and Katherine King, PhD, to discuss some of the questions they were unable to cover during the time allotted for the webinar.
Alexandra Shlimovich (AS): How is the framework for community engagement (CE) you presented different from the framework for research with individual participants?