During her years as a clinician, Boghuma Titanji, MD, MSc, PhD, keynote speaker at the 2015 Advancing Ethical Research Conference (AER15), struggled to deal with cases of preventable, infectious diseases, particularly in children. Many times, the parents could not afford treatment and, as a result, the child died. During her interview for People and Perspectives, she talks about one such instance where a child with severe malaria died in her arms after the parents were unable to afford a blood transfusion. This experience, and [...] Read more
TAG ARCHIVES FOR 2015 AER Conference
The Middle East Research Ethics Training Initiative (MERETI) was established in 2005, and aims to help enhance research ethics capacity in the Middle East by offering educational programs in health research ethics. Three MERETI trainees attended the 2015 Advancing Ethical Research Conference in Boston through PRIM&R’s scholarship program, and blogged about their experience on the MERETI Network. Below we have included some of their thoughts on the conference, along with links to their full blogs. Read more
Talk about a quick dividend! The dust hasn’t even settled on the travel bags that I carried to the 2015 SBER and AER Conferences, and yet I’m already applying the lessons learned to my responsibilities as IRB Chair at Providence College.
As you may recall from my previous Ampersand postings, my learning experiences at this year’s conferences focused on the difficult choices that are faced by researchers who are engaged in “big data” projects. These researchers find it impracticable to engage in routine [...] Read more
This session at the 2015 Advancing Ethical Research (AER) Conference was a follow up to the 2014 AER Conference session "Using Empirical Evidence to Reduce Consent Form Length" presented by Amy Corneli, PhD, MPH, and Jeremy Sugarman, MD, MPH, MA. In last year’s talk, they shared preliminary data about their effective delivery of informed consent (EDICT) study based on interviews questioning what participants thought must be in the informed consent form (ICF) and what could be removed. This year’s follow-up session by Amy Corneli shared the study findings submitted for publication. What was learned can be put to use by [...] Read more
How was it listening to Dr. Massie’s plenary session at the 2015 AER Conference (AER15)? It was like sitting in a cozy room, warmed by a glowing fire, catching up with a too-long-out-of-touch dear friend. Bob Massie is a magical storyteller. Describing in measured tones, touched with a tinge of irony a life challenged by health issues both genetic (hemophilia) and manmade (infection with HIV and Hepatitis C from a tainted blood supply), he painted dozens of tender, amusing, frightening pictures of a life lived, delayed [...] Read more