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Research Ethics Roundup: ClinicalTrials.gov, gene drives, deidentification, and more

(PRIM&R) Public Responsibility in Medicine and Research

This edition of Research Ethics Roundup covers ClinicalTrials.gov reporting, the ethics of gene drive technology, varied responses to germline editing,…

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Is your data sharing consent language transparent and machine readable? 

(PRIM&R) Public Responsibility in Medicine and Research

Sharing participant research data is critical to supporting reproducibility and collaboration in the scientific community, and leads to more reliable,…

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Conducting an IRB Self-Assessment

(PRIM&R) Public Responsibility in Medicine and Research

Conducting an Institutional Review Board (IRB) self-assessment may help administrators refine standard operating procedures and streamline communication. It’s an essential…

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PRIM&R’s Comments on NIH’s Draft Policy for Data Management and Sharing and Supplemental Draft Guidance

(PRIM&R) Public Responsibility in Medicine and Research

On November 8, 2019, the National Institutes of Health (NIH) released its Draft NIH Policy for Data Management and Sharing…

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Webinar Follow-Up: Assessing and Mitigating Risk in SBER

(PRIM&R) Public Responsibility in Medicine and Research

The risks associated with social, behavioral, and educational research (SBER) are often subjective, unpredictable, and hard-to-identify. Even the most experienced…

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PRIM&R advances the highest ethical standards in the conduct of research. We accomplish this mission through education, membership services, professional certification, public policy initiatives, and community building.