5
Jun2015

Research Ethics Roundup: Questions Raised by Same-Sex Marriage Study, Rapid Research, and More

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5 Jun
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From research being conducted by Facebook to questions raised by a study on public opinion of same-sex marriage, this week's Research Ethics Roundup delves into the world of social and behavioral research. Read on to learn more about these and other stories in the world of research ethics and oversight.

Do You Consent?: In  this piece for Slate, James Grimmelmann, JD, considers questions raised by studies conducted by Facebook and other entities outside of the traditional research realm, and considers the role of research oversight in those contexts.
<[...] Read more

4
Jun2015

Legislation Changes the Rules for Research Uses of Newborn Dried Bloodspots

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4 Jun
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By Avery Avrakotos, education and policy manager

In March, the Newborn Screening Saves Live Reauthorization Act of 2014 went into effect. The act, which is an extension of the Newborn Screening Saves Lives Act of 2008, reauthorizes nearly $20 million in funding and expands state-based infant screening programs. It also contains a controversial amendment that requires informed consent for any federally funded research activities using newborn dried bloodspots.
Infant screening programs have been in place in the United States for more than 50 years. The programs, which are Read more

3
Jun2015

Ask the Right Questions

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3 Jun
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By Vinisha Bhatia, research associate, Staff Development and Knowledge Management at Innovations for Poverty Action

As an IRB Coordinator for an international research and policy nonprofit, Innovations for Poverty Action (IPA), I had the opportunity to attend PRIM&R's IRB Administrator 201 course during the 2015 Spring Regional Meeting in April. My goal was to learn more about IRB administration and review processes in order to apply this knowledge to my organization's work in social and behavioral research in the international development sector. [...] Read more

29
May2015

Appreciating Varied Perspectives

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29 May
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By Anne Meade, senior manager for website and social media

The process of developing federal regulations may be unfamiliar to those whose jobs require adherence. In this excerpt from People and Perspectives, Richard Klein, director of the Food and Drug Administration’s Patient Liaison Program in the Office of Health and Constituent Affairs, talks about being involved in the process of writing the Common Rule. As this was his first foray into writing regulations, at the beginning, Mr. Klein did not anticipate too much difficulty. He quickly realized that assembling [...] Read more

28
May2015

In Memoriam: Edward “Pat” Pattullo

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28 May
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Edward "Pat" Pattullo, retired director of the Center for the Behavioral Sciences at Harvard University, passed away on May 7, 2015. He was 92.

From the age of 19, Pat navigated the globe with the American Field Service, the British Eighth, and later the British Indian Army. He returned to the United States in 1947, where he received his bachelor’s degree from the University of Chicago. In 1957, Pat was recruited to Harvard University by Nathan Pusey and became assistant dean to McGeorge Bundy. After a short time at York University in Toronto, Pat returned to Harvard in 1965 as the director of the William James Hall Center for the Behavioral Sciences, a position he held until his retirement in 1987.

When [...] Read more

27
May2015

Giving Back to the Human Community: An Interview with Carole Ehleben

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27 May
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By Nora Murphy, membership assistant

Welcome to another installment of our featured member interviews where we introduce you to our members—individuals who work to advance ethical research on a daily basis. During May, Member Appreciation Month at PRIM&R, we are featuring a new member interview every week! Please read on to learn more about Carole Ehleben, EdD, senior partner at Consultants for Evaluation and Applied Research (CEAR).

Nora Murphy (NM): When and why did you join the field?
Carole Ehleben (CE): By way of background, I'm the senior partner and [...] Read more