On July 10, 2015, the US House of Representatives passed H.R. 6, the 21st Century Cures Act, with a vote of 344-77. The passage of the bill, which many have hailed as a noteworthy example of bipartisan collaboration, is the result of more than a year of congressional hearings, roundtable discussions, whitepapers, and political debate. First introduced in April 2014 by Fred Upton (R-MI), chairman of the US House of Representatives’ Energy and Commerce Committee, and Representative Diana DeGette (D-CO), the 21st Century Cures initiative seeks to "accelerate the pace of cures in America."
The legislative phase of the 21st [...] Read more
Earlier this year, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) released the second part of its report on neuroscience and ethics—Gray Matters: Topics at the Intersection of Neuroscience, Ethics, and Society (Gray Matters, Vol. 2). The report examines in depth several controversial topics that bring ethical issues to the fore, including cognitive enhancement, neuroscience and the law, and the ethical conduct of research with participants with impaired capacity for informed consent. Read more
by Rebecca S. Ohnemus, MAA, CRA, Research Officer at University of the Incarnate Word
PRIM&R is pleased to share a post by Rebecca Ohnemus, MAA, CRA, a member of the PRIM&R Blog Squad for the 2014 Advancing Ethical Research (AER) Conference. The PRIM&R Blog Squad is composed [...] Read more
Perhaps you’ve already read – on your Facebook News Feed, no doubt – about Facebook’s recent mood experiment. Not to worry—this post has no hidden motive. We’re just pleased to be able to share recent headlines from around the research ethics world with you.
Everything We Know about Facebook’s Secret Mood Manipulation Experiment: Following the publication of a paper in the Proceedings of the National Academy of Sciences, [...] Read more
On October 24, 2013, PRIM&R hosted a webinar titled Protecting Human Subjects in Qualitative Research: Ethical Considerations for IRBs and Researchers. Julie Simpson, PhD, director of research integrity services at the University of New Hampshire led the webinar while Elisa A. Hurley, PhD, education director at PRIM&R, served as the moderator.
Following the webinar, we connected with Dr. Simpson, and she kindly answered a few more questions that came in from webinar participants, exclusively for Ampersand.
<[...] Read more