We clearly have entered the era of big data. Armed with petabytes of transaction data, clickstreams and cookie logs, as well as data from social networks, mobile phones, and the "internet of things," a wide range of economic interests, including consumer marketing, health care, manufacturing, education, and government, are now in pursuit of the value of data-driven decision-making that big data promises.
At the same time, the big data that increasingly fuels economic decision-making has emerged as a rich terrain for engaging in academic research and experimentation: think of the Facebook emotional contagion experiment of 2014, where the news feeds of nearly 700,000 users were altered [...] Read more
This piece, which originally appeared on the Petrie-Flom Center's Bill of Health blog, was written by Luke Gelinas, and has been reposted with permission.
1. Interpreting the proposed consent requirement
One of the most discussed and controversial aspects of the Department of Health and Human Services’ recent notice of proposed rule-making (NPRM), which stands to change the federal regulations [...] Read more
The Middle East Research Ethics Training Initiative (MERETI) was established in 2005, and aims to help enhance research ethics capacity in the Middle East by offering educational programs in health research ethics. Three MERETI trainees attended the 2015 Advancing Ethical Research Conference in Boston through PRIM&R’s scholarship program, and blogged about their experience on the MERETI Network. Below we have included some of their thoughts on the conference, along with links to their full blogs. Read more
The Notice of Proposed Rulemaking (NPRM) has since generated controversy among many researchers and ethicists, ultimately raising uncertainty with regard to the future of human subjects protections. Read more
This piece, which originally appeared on blog.bioethics.gov, the blog of the Presidential Commission for the Study of Bioethical Issues, was written by the Bioethics Commission Staff and has been reposted with permission.
This is the first post in our "History of Bioethics" series in which we will examine some of the seminal events that shaped the landscape of bioethics and its practice in the world today. This first blog will focus on the creation of the national bioethics advisory bodies in the United States and their different iterations throughout the years.
From our [...] Read more