TAG ARCHIVES FOR community engagement

17
May2013

Last Friday, the world lost a powerful advocate for breast cancer awareness and research. Barbara Brenner passed away from complications of amyotrophic lateral sclerosis (ALS) on May 10, 2013. Ms. Brenner, a lawyer by training and a civil rights activist by design, was diagnosed with breast cancer at the age of 41, an experience that compelled her to become involved with what was then a fledgling grassroots advocacy organization in San Francisco, Breast Cancer Action (BCA)

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9
May2013

by Dahron Johnson

Dahron Johnson has worked as the Chaplain for HighPoint Hospice in Gallatin, TN, as well as serving two and a half years as an Association for Clinical Pastoral Education chaplain resident and intern at the Department of Veterans Affairs' Tennessee Valley Health System’s Nashville campus. He continues to serve at the latter as a community member on the IRB, and is involved with other area ethics roundtables.<[...] Read more

3
Apr2013

by Emily E. Anderson, PhD, MPH, Assistant Professor of Bioethics, Loyola University Chicago Stritch School of Medicine

Academic investigators who partner with communities to conduct research face many challenges. But many find that the rewards of collaborating, such as increased community trust and support and better recruitment and retention rates, are worthwhile. And communities benefit from these collaborations by receiving health-related programming, skill and capacity building, data, grants, and maybe even a [...] Read more

6
Feb2013

by Lesley Solomon, director of strategy and innovation at the Biomedical Research Institute at Brigham and Women’s Hospital, Boston

At Brigham and Women’s Hospital (BWH), we are constantly thinking about new ways to create conversations around our work—what it means to us, our patients and the community, and how we can strive to do better. It is in this spirit that we hosted our [...] Read more

29
Jan2013

by Joan Rachlin, JD, MPH, Executive Director

I spend a lot of time thinking about how to best achieve the delicate balance between ardently and adequately protecting research subjects, on the one hand, and promoting ethical and responsible research, on the other. Protecting those who participate in research is fundamentally a human rights and human dignity issue, and I thus drew a lot of inspiration from three commemorations I attended in honor [...] Read more

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