TAG ARCHIVES FOR biospecimens

5
May2017

This week’s Research Ethics Roundup reviews the ways research with biospecimens has changed since Henrietta Lacks' story made news, how the National Institutes of Health (NIH)'s grant application changes focus on transparency in preclinical research, how ethicists can avoid stereotyping prisoners who choose to participate in research, and how one of the top research search engines is improving transparency efforts. Read more

6
Sep2016

Since the release of the Notice of Proposed Rulemaking to revise the Common Rule a year ago, I have been thinking about biospecimens research, specifically about the role of public trust in the success of such research, and about some of the tensions that arise between respecting people’s autonomy, and advancing potentially important and beneficial science. This is a complicated cluster of issues that, while particularly salient to biospecimen research, is generalizable to the research enterprise as a whole. Read more

25
Jan2016

The last few months have been a bit of blur. The long-awaited NPRM to revise the Common Rule was released in September, setting off something of a firestorm of commentary, concern, and clamor around what was in the proposal, and what wasn’t; what might work, and what wouldn’t; and of course, how it would all look in the "real world" of ethical research oversight. Here at PRIM&R we spent a good deal of time over the three-month comment period crafting our response to the NPRM, and [...] Read more

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