19
May2017

This week’s Research Ethics Roundup highlights a Nature editorial that encourages researchers to push back against both public and private forms of censorship in research contracts, the National Institute of Health (NIH)’s Comparative Genomics Branch issues new study with implications for both human and dog disease research, the World Health Organization (WHO) speaks with Doctors Without Borders about using an experimental vaccine to target a new Ebola outbreak, and bioethicists' concern about stem cell researchers' failure to publish study results including discoveries on side effects. Read more

18
May2017

As part of the Interagency Collaborative Animal Research Education (ICARE) Project, PRIM&R convened two Train-the-Trainers Institutes (TTIs) in 2016 for IACUC leaders and educators to learn how active learning techniques can enhance the effectiveness of their training programs. To further disseminate the materials and lessons from the TTIs, PRIM&R hosted the free webinar Incorporating Active Learning into IACUC Training. We’re pleased to share answers to follow-up questions from the webinar with the readers of Ampersand. Read more

16
May2017

For this month's question, you are a principal investigator in a very promising Phase 3 pancreatic cancer study. The sponsor has just informed you that you can enroll only one more patient before enrollment closes. Enrolling in this study might save your patient’s life. Ten of your patients are eligible for the study. Who do you invite to participate in the study, and how do you decide? Read more

12
May2017

MISST is an acronym the Connected and Open Research Ethics (CORE) initiative research team uses to describe research that involves the use of mobile, imaging, pervasive-sensing, social media, and location-tracking strategies that can passively observe human behavior. The CORE is a growing community where conversations about research ethics and technology are beginning. We seek to increase awareness of this resource and we invite IRBs and research stakeholders to get involved—specifically, we want to hear from the PRIM&R community! We invite you to join the conversation by signing up for the CORE Network and sharing your questions about how to do this research and/or your expertise and lessons learned. You can also follow CORE on Twitter and LinkedIn. Together we can learn from one another and begin to have an informed discussion developing an ethical framework for MISST. Read more

10
May2017

Poster presenters at our annual conferences often continue their research or program long after the event. Read on for more from Deirdre Lombardi, MPH, CPH, CHES, Challace Pahlevan-Ibrekic, CIP, MS, Brenda Ruotolo, BA, CIP, and Alan Teller, CIP, who presented a poster titled Development of a Specialized IRB for Genetics and Genomics Research, at the 2016 Advancing Ethical Research Conference (AER16). Read more

8
May2017

In April, PRIM&R hosted the webinar Compensation or Inducement? What IRBs Need to Know about Paying Subjects for Participation. Presented by Alex John London, PhD, and Betsy Ripley, MD, MS, RAC, this webinar provided foundational knowledge about the underlying ethical principles that govern compensating tresearch subjects. Through case studies, examples, and review of existing guidance and regulations, attendees learned strategies for evaluating payment to subjects for their participation in studies. Here, the presenters answer some of the questions time didn’t permit us to answer live. Read more

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