This Saturday, HBO debuts the film adaptation of The Immortal Life of Henrietta Lacks. The well-reviewed feature-length production, starring Oprah Winfrey, closely follows the life of Deborah Lacks, the daughter of Henrietta and the protagonist of Rebecca Skloot’s award-winning 2010 book.
At the 2014 Advancing Ethical Research Conference, PRIM&R hosted a roundtable discussion with members of the Lacks family, the National Institutes of Health, and Johns Hopkins University. Participants discussed the Lacks family’s initial perspectives and processes in understanding the choices they had to make regarding genomic data from the HeLa cells, in addition to what has changed since Skloot’s book was published.
PRIM&R shared this conversation on our podcast, More than Meets the IRB: A joint initiative of Washington University in St. Louis and PRIM&R. Listen now in anticipation of watching the film!